Friday, May 28, 2010

Moving on Up!

There is an official kindergartner in the house. Holy Moly. I have the official meeting next week but developmental preschool ended yesterday.Per Darsie's request, we celebrated at McDonald's.

Tuesday, May 18, 2010


I'm hiding in the office pounding circus animal cookies like never seen before while I listen to my girls play in their room and keeping an eye out for Darsie's bus.

Anyways, Darsie took her first dose of Baclofan last night and I'm really, really hoping that it helps her. We're starting out small (just 4mg once a day for a week and then we'll add a second dose, and a third dose the following week) but fingers crossed for improvements with minimal side effects.

Wednesday, May 12, 2010

Call for Shops

Having a child with a disability totally changed our lives. Coming home from the NICU with a fragile baby with lots of therapy in the future meant that I could no longer keep my graphic design job in Seattle. It meant becoming a stay at home mom. In the wake, I opened up first my sewing shop on Etsy and later my fabric shop (both on Etsy and now a stand alone shop). I would really love to put together a list of other shops/services of parents (or whomever) of disabled kids. So, if you have one or know of one, please put a link in the comments and I'll get a list put together sort of like my Other Cool Kids blog list.

Thursday, May 06, 2010

Pure Craziness...

Yesterday, Elise took a big bite out of a jalapeno and then rubbed it in her eyes.

Today, I've caught her sneaking mini Oreos a handful of times.

Darsie soaked her tshirt just as the bus was coming up the driveway.

Somebody drew all over their baby brother.

Darsie packed her own lunch for school...which also means that an entire box of Uncrustables (Yes, I'm one of THOSE parents) has been scattered to the ends of the earth, or at least strewn throughout the house.

And somehow, the house that was clean last night when we went to bed is now trashed.

Life with three children. I wouldn't trade it for the world but man, can it be crazy at times!

Oh, and I just found Elise digging around in a potted plant with a pencil....

Wednesday, May 05, 2010

Some Updates

This poor little blog has been gathering dust as life has seriously been hurtling by, faster than ever.

I registered Darsie for kindergarten today.

I can't believe that my teeny tiny 1lb. 12oz. little baby girl will be going to kindergarten next year. Amazing.

She is doing amazingly well. We're still having issues with her foot turning in. As I last reported, the second round of Botox did almost nothing. We followed with a round of serial casting and while that did help, it was short lived. We're currently waiting on a prescription of Baclofan to get authorized (week!) to give it a shot.

As for the other kids, Elise just turned three and "graduated" from Early Intervention. She had some sensory issues due to her premature birth and while we still can see signs of them (toe walking, etc.) she is doing soooo well and her speech is out of this world. Darsie didn't really talk until she was three and Elise is a jibber jabber nonstop. Amazing how much an additional five weeks of womb time can do for a wee babe.

Robert just turned six months old yesterday. He is rolling front and back, pivoting, and devours apple sauce and rice crackers. Sweetest little baby boy with the gooiest grins. We love him to pieces.

I'm going to try to do a better job at keeping this blog updated. I've received a couple of emails in the last few days about people who are just getting into the whole CP treatment range and I really do want to give our experiences a voice to others. If you ever have ANY questions or just need to talk, please don't hesitate to contact me.