Tuesday, March 29, 2011

Updates and some Botox

An update to the recent placard post I wrote is that I talked about it with Darsie and she is VERY opposed to it for some reason. I don't know if she has been hearing things at school (she said to Bert one day in a very loving tone "You're disabled, you are disabled") or what is happening, but she does not want one. I think at this point in her young life all she wants is to fit in and be similar. I know right now she is really struggling with being pulled out of class for OT and PT (she actually yelled at the OT one day because the class was going to have cupcakes for St. Paddies Day and she thought she was going to miss them) and she doesn't want to seem so different.

Darsie also went on a play date/party date to a friend's house and it was a success. We are working on setting up some more soon.

Darsie also had a fourth round of Botox last week. I'm not sure if we will follow it up with the serial casting that we have done in the past, but I wouldn't be surprised. She responds really well to that combo. I do recommend that for anybody contemplating Botox, talk to your doctor about giving your child Versed before the IV and the Propanol. At least it is a combo that works well with Darsie.

We are on Spring Break for the next two weeks and of course Darsie is sick. So, today is a Mac-n-Cheese/couch/movie sort of day. Hopefully brighter weather and moods is just around the bend.

Wednesday, March 02, 2011

A Volatile Post, Perhaps?

First off, I wanted to thank everyone for your thoughts and recommendations on my last post about Darsie and making friends. We've made some great strides in the last week and hopefully it will continue.

I have a topic I've been thinking about for awhile and am hoping to get other parents/people to contribute on - handicap parking placards.

Darsie is very able. But walking does wear her out more so than typical people. And she walks slowly. According to the Washington State web site on the matter, I do believe that she would qualify - Your ability to walk is severely limited due to an arthritic, neurological, or orthopedic condition.

I know that it would make our lives so much easier. But then I get to thinking, would it make Darsie's life easier or just mine? I'm thinking of shorter jaunts across parking lots with the three kids and being closer to our destinations. I think about all the people that use placards that don't "appear" to need one (although, as with Darsie, not all conditions are visible). I know that she doesn't really need one and so for the time being, we've held off on applying for one.

And as I say that, I know that if and when it would really benefit her, we'll be the first ones in line for a placard.