Preemie Parent Request - Updated with my Response

-- I received this e-mail over the weekend and thought I would share it with everyone so that more people had the chance to reply. I will post my reply once I complete it.


Dear Preemie Parent:

Hi. My name is Andrea Ball and I am a reporter with the Austin
American-Statesman in Austin, Texas.

I am writing a large story about the mental health effects of premature
birth on families. This story is funded in large part by the Rosalynn
Carter Mental Health Journalism Fellowship Program.

The main story follows a family with three premature children. We look at
their childrens' hospital stay, their challenges at home, the effects on
the parents' marriage and the financial problems caused by medical costs.
We explore the issues of depression, anxiety and post traumatic stress
disorder. We are also looking at the long-term effects on prematurity on
the child.

As part of this, the newspaper would like an online presence of parents who
have been through all this.

If you are interested, please answer the following questions and email them
to rquigley@statesman.com and aball@statesman.com>

Please make sure you put the words PREEMIE PROJECT in the subject line so we
are sure to see it. Here's what we need:

Your name

Your child's name

Your city and state

Hospital photos and current photos of your child.

If you have videos of your child on YouTube, please send us a link.

Then, please answer these questions (there is no word limit):

What were the circumstances of your premature birth and at what gestation
did the baby arrive?

What was your NICU experience?

What has been your experience since your child came home?

Please discuss any mental health effects you or your child have experienced
as a result of prematurity (depression, anxiety, post traumatic stress
disorder, marital stress, OCD, bipolar disorder)

Please discuss resources you used to get your family through the
stressful/emotional part of this time. (counselors, spiritual leaders, etc)

Thank you so much for your help. Your kindness is greatly appreciated.

Andrea Ball


-----------

My response:

Your name: Shannon *****

Your child's name: Darsie and Elise *****

Your city and state: Port Orchard, WA

Hospital photos and current photos of your child.

Darsie:




Elise:




What were the circumstances of your premature birth and at what gestation did the baby arrive?

Darsie
With Darsie's birth, I had a routine doctor visit at 27 weeks that showed a high blood pressure. We did the PIH labs and everything came back normal. That following Friday evening was particularly rough. I didn't feel well, I didn't sleep well, and I knew that something was just plain wrong. My whole back ached and things just weren't normal. I took my blood pressure at home and it was so high that I thought the machine was broken. Saturday morning I called into the doctor office and they asked me to go to the local fire station and have them take it to confirm either the reading or that the machine was broken. The fire station confirmed my high reading and off to the hospital we went. At the hospital, the nurses immediately gave me a steroid to mature the baby's lungs and did everything in their power to lower the blood pressure. After the baby started suffering because of the blood pressure, it was decided that she needed to be born and by Sunday at 9pm, she was here weighing in at 1 pound 12 ounces at 28 weeks and 1 day.

Elise
With Elise, I was taking every precaution in the book. So, when 33 weeks rolled around and my blood pressure started being weird, I knew that we were going down the preeclampsia road again. I went to the doctor on Tuesday and of course everything was normal. By Thursday evening I was experiencing high readings and off to the hospital we went again. I was monitored and given meds to lower but again, nothing was working. Steroids were given for the baby's lungs. On Sunday at 7am my doctor decided that Elise needed to be born. I was put completely under and she was here by 9am weighing in at 3 pounds 7 ounces at 33 weeks and 5 days.

What was your NICU experience?

Darsie
Darsie was in the NICU for two and half months. She was on the vent for only 24 hours but on oxygen (either CPAP or cannula) for a month and a half or so. She had a grade IV IVH which has resulted in hemiplegia cp on the right side of her body. We had a pretty decent experience, visiting every day and really involving ourselves in her care. We had numerous "scares" but they all resulted in nothing really major (except for the bleed of course).

Elise
Elise was only (as if there is an "only" involving the NICU) for two and half weeks. She was mainly needing to be taught to eat.

What has been your experience since your child came home?

Darsie
Darsie was diagnosed with hemiplegia cp on her right side due to the IVH on the left side of her brain. Since she was one, we have been involved with early intervention and receiving PT, OT, speech therapy, and hydrotherapy. She turns 3 in September and transitions to the school district, so that should be "intersting". She wears a DAFO on her foot and a brace on her hand.

Elise
Elise is only 12 weeks old but has developed plagiocephaly. At this point she has not been casted for a helmet.

Please discuss any mental health effects you or your child have experienced as a result of prematurity (depression, anxiety, post traumatic stress disorder, marital stress, OCD, bipolar disorder)

We have been pretty lucky in the mental health department. I think with Darsie we were just so focused on moving forward that we didn't have time to stress out. There was some relationship stress and more arguments that normal, but everything worked out. I think with Elise, because we had a 2.5 year old at home and it was almost impossible for Jeff and I to visit Elise at the same time that there was more stress than with Darsie. Jeff was working from 8am-7pm and then visiting her and not getting home until 10 or 11. I was recovering from a c-section, watching Darsie during the day, and fitting in a 2-3 hours visit with Elise. We were very stressed from that and when she came home, we had some difficulties adjusting to having two children and everything that resulted. After she was home for a couple of weeks, I switched from pumping full time to breastfeeding and I would say our most difficult adjustment period was during that time.

Please discuss resources you used to get your family through the stressful/emotional part of this time. (counselors, spiritual leaders, etc)
None.

Baby and the Bumbo

One of "THOSE" Days

I'm starting to wonder what the quality of my day will be like.

It started out with the baby waking before the alarm clock went off wanting to be fed and hasn't gone to sleep again.

Jeff misplaced his wallet. Or rather (in his defense), he put the pants with the wallet in them in the clothes hamper and the wallet fell out which resulted in CODE YELLOW search for the wallet this morning. Luckily we found it in time before the late ferry left and before we started canceling credit cards.

And the latest involves the aforementioned baby. Some very wet sounds emanated from her nether regions and instead of thinking "oh, yes, the long awaited poop has finally arrived", I stupidly stuck my finger in her diaper and of course, was covered in poop. Did you know that baby poop can get under your wedding ring and despite washing your hands with soap and water, still track baby poop everywhere? It is like a miracle substance with absolutely no purpose except grossness (my husband thinks that there might be a commercial application for slug goo...like an industrial grade lubricant or something).

On a happier and somewhat more clean point...Elise is three months old as of yesterday! How in the WORLD did that happen?

Pictures soon. I put her in the Bumbo seat yesterday and she LOVED it! Darsie then also had to sit in the seat and consequently got stuck and scooted all over the living room trying to find some traction to unstick herself. Total comedic moment.

Spooning and Spoons

Darsie and I have two entirely different ideas about what "spooning on the couch" means.

Mine is more along these lines: http://en.wikipedia.org/wiki/Spooning

while hers is more along these:
(image from wikipedia)

Imagine my surprise when she presented me with a spoon after I asked her if she wanted to spoon with me on the couch.

Ugh...blogging...

I will often times go back and reread posts and just think bleh. I wish that blogging was more train of thought from my head rather than train of thought through my fingers because it gets seriously messed up somewhere between my brain and my keyboard. *I* think I'm much more eloquent than my blog writing portrays but who really knows. I think part of it has to be that even when I have the time to sit down and write something out I either have a child needing me or a list of things in my head that need to be done.

At least my girls are cute.




And my husband is a hunk who knows how to fix brakes.

I make milk...

I make milk.

I received a $7.00 check from Enfamil good until September 30th. I obviously don't need it (especially since they also sent me two of the small cans of formula). So, anybody want it? I could sell it on ebay, I guess, but I don't really see the need, plus I'm too busy at the moment to sit down and list it.

Just send me an email: lilliputianmama at gmail dot com